The past two weeks have been busy with more appointments and trying to keep life normal. I met with the radiation oncologist to see what the plan is for me, and I also met with a second radiation oncologist to make sure I was getting the best treatment possible. Both were optimistic, and the radiation will not be just for pain relief but to also destroy the lesion. I've been mapped out for radiation and my body mold was made. I'll have a simulation done before my first treatment. I am hoping radiation will start soon, but it apparently takes two weeks for a plan to be made and then radiation has to be scheduled. The navigator didn't care that I'm stage four, have discomfort, and can't start my last medicine until after radiation is completed. I'm honestly not sure how she ended up in her role, but she's the first person I've encountered at SCOA that I don't care to interact with.
I also spoke with a third oncologist and now have two saying consider Kisqali and SCOA saying Ibrance. Ibrance has been studied longer and there are a lot of women who do well on it, but latest studies give the edge to Kisqali as far as PFS (progression free survival). I'll at least get started on Ibrance, as insurance approved it, but will be talking with SCOA onc about Kisqali. I've already started my three other meds - two are monthly injections and one is a daily pill. The Ibrance (or Kisqali) will be the last piece.
I really liked the third oncologist, and he was very optimistic. He said it's possible the lesion has been there since my original diagnosis in 2016, and with that and the fact it didn't light up on the Pet/CT, he would think it's slow growing. Like the SCOA onc, he also talked about my future years and years down the road. I'm realistic and know things can change with any scan, but I'm also optimistic and truly appreciate having an optimistic care team.
So with this update, please pray radiation is successful. Please pray for healing. Please pray for a long life. I know God can heal me. I know God can work miracles.
